About Hereditary Cancer including answers to:

  • What is hereditary cancer?
  • What is genetic counseling and how can it help?

Contracting for Informed's Services

The information provided below should be useful to health care providers (health insurers, employer based health insurance providers, large medical/hospital systems, etc.) in deciding whether contracting with Informed Medical Decisions may be the right choice for your members and patients.

Cancer genetic counseling recommendations

“ASCO recommends that genetic testing only be done in the setting of pre- and post-test counseling, which should include discussion of possible risks and benefits of cancer early detection and prevention modalities.” JCO 21;2003.

Informed provides easy access to Board Certified/Eligible Genetic Counselors for individuals at risk for hereditary cancer. These experts are available by telephone.

Genetic Counseling for individuals considering genetic testing for hereditary cancer is recommended by professional societies such as:

"ASCO supports efforts to ensure that all individuals at significantly increased risk of hereditary cancer have access to appropriate genetic counseling, testing, screening, surveillance, and all related medical and surgical interventions, which should be covered without penalty by public and private third party payers." JCO 21:2003

Most genetic counselors are available in and around large cities, leaving vast areas of the United States without access to their expertise. Informed’s telephone approach increases access for all individuals at risk for hereditary cancer, regardless of their location.

Informed’s genetic experts have extensive experience providing hereditary cancer genetic counseling and testing. We work to ensure that patients and providers can make confident medical management decisions based on the individuals’ increased cancer risks.

Informed Medical Decisions cancer genetic counseling services

Informed Medical Decisions:

  • documents and interprets the patients personal and family medical history to provide cancer risk assessments for the individual.
  • identifies individuals who may benefit from cancer genetic testing.
  • provides pre- and post-test genetic counseling including information regarding the benefits and limitations of genetic tests and high-risk medical management options.
  • facilitates the genetic testing process to ensure appropriate testing.
  • interprets complicated genetic test results for patients and their health care providers.
  • identifies research, advocacy, and support resources for individuals who are at increased risk for cancer based on genetic test results and/or family medical history.
  • provides summary letters for patients and their health care providers that review the content of the telephone consultations and documents cancer risks and medical management options to be considered.

CONTACT Informed NOW to discuss options for contractiong for their genetic counseling services.

What do genetic counselors provide for individuals at risk for hereditary cancer?

It is estimated that over 1 million people in the United States carry a hereditary gene mutation that causes increased cancer risks.  However, fewer than 3 percent of them know it.

Genetic counselors use the family history as a tool to identify those who are at risk for hereditary cancer. We work with our individual clients to target genetic testing in their family in order to provide the most informative results. Our genetic counselors interpret complex genetic test results and ensure that individuals receive accurate cancer risk information and appropriate medical management recommendations. Genetic counselors help individuals at increased risks for cancer make informed decisions about genetic tests, preventive options, and cancer screening based on their individual risks.

Why use Informed’s genetic counseling services?

Access

Informed is one of the first companies to take an alternative approach to providing access to genetics experts. Telephone access to genetic counseling services for hereditary cancer provides a unique way for busy individuals to access these experts. The genetic testing process for hereditary cancer risk includes both a pre- and a post-test consultation with a genetic counselor. Traditional in-person services require multiple visits and may require lengthy travel time for patients. Most cancer genetics experts work in and around large cities leaving vast areas of the United States without access to their expertise. These obstacles to genetic services are overcome with telephone genetic counseling services.

Expertise

The founder of Informed has extensive experience in clinical cancer genetic counseling, cancer genetic molecular testing, and cancer genetic counseling by telephone. These unique experiences allow Informed to provide expert cancer genetic counseling services by telephone. Only the most up-to-date and clinically relevant tests and information is provided to patients accessing our telephone services.

Focus on Health Literacy

The field of genetics poses special health literacy and numeracy (def. Able to think and express oneself effectively in quantitative terms) challenges. A significant component of genetic counseling for hereditary cancer requires individuals to comprehend possible risks (of developing cancer, of carrying a gene mutation, of reducing cancer risks with varying medical management options, etc.). These risks are inevitably tied to concepts such as probability and proportions which are difficult to comprehend for those with low numeracy. The genetic counseling field is only beginning to explore how health literacy and numeracy affects our patient’s knowledge and decision making. Informed will continually consider creative ways to inform and empower patients and their providers to use cancer risk information to make the most informed decisions.

Efficiency

Hereditary cancer services require a significant amount of time and expertise. This is reflected in waiting lists and multiple in-person visits for cancer genetic counseling services across the country. Informed has built in efficiencies that streamline the entire process for patients, health care providers, and their own counselors. Our telephone option eliminates all of the travel time and cost associated with traditional in-person services.

Coordination of follow up care

At Informed we facilitate the genetic testing process, when patients chose this option, by working with the patients’ designated local health care provider. Patients are recommended to share the summary letter resulting from their interaction(s) with Informed, including interpretation of any genetic test results, with their most trusted health care providers. This collaboration encourages the patient to work with their health care provider(s) to implement the best medical management strategy based on their individual cancer risks.

Outcomes reporting

Informed provides contracted health insurance and other providers the option to receive summary data regarding utilization (uptake of telephone counseling, uptake of genetic tests, changes in screening and preventive choices, etc.), health outcomes (cancer diagnoses, methods of detection, etc.), and patient specifics (knowledge, patient satisfaction with pre- and post-test counseling, etc.)

How can my members/patients access Informed’s cancer genetic counseling services?

Informed contracts with health care providers (health insurers, employer administered health plans, and large hospital and health care organizations) to make access to their telephone genetic counseling services available to those who are at risk for hereditary cancer. Please contact Informed directly by e-mail at: payors@informedmedicaldecisions.com or telephone (1.800.975.4819) if you are interested in learning more about contracting with Informed for their telephone cancer genetic counseling services.